The thirty-fifth episode of our podcast is now available across a variety of audio platforms, along with YouTube where it can be enjoyed in video format.
Raiden Pham is affected by UBA5 disease, a life threatening progressive neurological disorder that can cause muscle floppiness and stiffness simultaneously, seizures, brain abnormalities and much more. In fact, it is so rare that only about thirty suffer this unfortunate condition worldwide. At two years old, Raiden is unable to sit, walk or talk. He can barely control his arms, and is fed via a stomach tube.
Upon learning of Raiden’s battle, we knew we had to reach out to his father, Tommy. With little to no research being conducted, Raiden’s father founded the Raiden Science Foundation and partnered with the University of Massachusetts Chan Medical School to develop an innovative type of gene therapy. Following this partnership, the Kombat4Rare charity was established to raise funds for vital research. This experimental treatment is expected to be completed within 2-3 years, but they need our help. The clock is ticking — you can help make a difference by donating or helping to spread the word.
We are also joined by the lovely Kerri Hoskins, who is best known for playing Sonya Blade in Mortal Kombat 3. As a special needs parent herself to two young men (Luke and Zachary), she knows exactly what it’s like to face an uphill and uncertain battle.
With the potential to save countless lives, it is imperative that we as a kommunity play our part. If you’d like to make a donation, please visit Kombat4Rare where you can join team Kamidogu and help us raise funds as a kommunity. Every dollar counts; if you can’t make a donation, please share this episode on your social media pages to further Raiden’s cause.
The Kamidogu Podcast is available across a wide range of platforms, including Apple Podcasts, YouTube, Spotify, Anchor, Google Podcasts, Pocket Casts, Castbox, Overcast, Breaker, Pandora, RadioPublic, Stitcher, iHeartRadio, TuneIn, Amazon Music, Audible, Castro, Podcast Republic and Podcast Addict.
Our podcast is provided free of charge; it’s the fans that keep us going. Do your part to support the show and keep our dream alive!
- share the podcast with your friends, family and followers
- subscribe/follow us and leave a rating and/or review on your favourite podcast platform
- leave us a thumbs up rating and/or comment on individual episodes in our YouTube playlist
- use the hashtag #KamidoguPodcast on social media to join the conversation
Until next time kombatants: have fun, stay safe and…STAY FLAWLESS!
